Centre for Health and Social Research

A/Prof Helen Bourke-Taylor
Monash University, School of Primary Health Care and Allied Health

Medicine Nursing and Health Sciences


Relevant professional roles

  • Co-author, Co-presenter, Healthy Mothers Healthy Families.
  • Research Consultancy, Cerebral Palsy Education Centre.
  • Reference Group member for the Department of Social Services committee for the Improved assessment of Carer Payment Carer Allowance 2015-2016.
  • Allied Health Representative, School Disability Advisory Committee, Department of Education, Employment and Training, (Federal Government, former DEEWR, current Department of Education and Training) 2011-2013
  • Associate Editor, Australian Occupational Therapy Journal.
  • Editorial board, Physical and Occupational Therapy in Pediatrics

Brief summary of expertise
Helen is an occupational therapist by training and has worked with many families, children and young people with disabilities in this professional capacity in both Melbourne and Chicago. Helen completed a PhD in 2010 that investigated the health and situation of Victorian mothers of school aged children with disabilities and subsequently developed the Healthy Mothers Healthy Families program along with women’s health general practitioner, Dr Fiona Jane. This single day workshop was delivered to mothers in Sydney and Melbourne on the ACU campus in 2015-2016, you can read about it here. Helen provides research consultancy and advocacy work in the area of childhood disability and family health, well-being and service needs and is committed to contributing to better opportunities and health for all family members.

Examples of completed disability research projects

  • Health of mothers of school aged children with a disability.
  • Development and psychometric evaluation of three tools:
    – Child’s Challenging Behaviour Scale for mothers of children with a disability
    – The Assistance to Participate Scale to measure the extent to which assistance is required to support involvement of children with disabilities in play and recreation.
    – The Health Promoting Activities, designed to measure health behaviors and participation among mothers with an additional carer role.
  • Successful school experiences for students with physical disability.
  • Costs of raising a child with cerebral palsy to age 6 years.

Current disability research projects

  • PhD student Ms Amy Hodges: The development and evaluation of a collaborative practice model to support young children with Autism Spectrum Disorder (ASD) to transition from early intervention services to mainstream school: a pilot project in collaboration with the Autism Association of Western Australia.
  • MPhil student Ms Lisa Gardner: Confident self-management of students with type 1 diabetes in schools.
  • PhD student Ms Linda Barclay: Community and social inclusion among adults living with spinal cord injury.
  • Evaluation of the Healthy Mothers Healthy Families project

Disability research publications

  1. Bourke-Taylor, H.M. Editorial. Supporting the occupational participation of Australia’s carers. Australian Occupational Therapy Journal, 63(3), 141-142.
  2. Bourke-Taylor, H.M., Cordier, R., Pallant, J. (2016) Child’s Challenging Behavior Scale Version 2: Criterion validity with Child Behavior Checklist and Strengths and Difficulties Questionnaire with young typically developing children. American Journal of Occupational Therapy (in press).
  3. Muskett, R., Bourke-Taylor, H.M., Hewitt, A. (2016) Intrarater reliability of the Health Promoting Activities Scale. American Journal of Occupational Therapy (In press).
  4. Bourke-Taylor, H.M., Pallant, J., Cordier, R. (2016) Child’s Challenging Behaviour Scale version 2: Psychometric evaluation with mothers of typically developing young children. American Journal of Occupational Therapy (In press).
  5. Gardner, L., Ziviani, J., Bourke-Taylor, H.M. (2016) Occupational therapy: An Untapped resource for children and adolescents with type 1 diabetes. Australian Occupational Therapy Journal (Early View).
  6. Barclay, L., McDonald, R., Lentin, P., Bourke-Taylor, H. (2015) Facilitators and barriers to social and community participation following spinal cord injury. Australian Occupational Therapy Journal, 63(1), 19-28.
  7. Cordier, R., Speyer, R., Chen, Y., Wilkes-Gillan, S., Brown, T., Bourke-Taylor, H., Doma, K., Leicht, A. (2015) Evaluating the Psychometric Quality of Social Skills Measures: A Systematic Review, PLoS ONE 10(7): e0132299.
  8. Bourke-Taylor, H., Cotter, C., Stephan, R. (2015) Complementary, alternative and mainstream service use among families with young children with cerebral palsy: Costs and family sacrifice to access choices. Physical and Occupational Therapy in Pediatrics, 35(3), 311-325.
  9. Bourke-Taylor, H, Lalor, A., Farnworth, L., Pallant, J., Knightbridge, L., McLelland, G. (2015). Investigation of the self reported health and health related behaviours of Victorian mothers of school aged children. Australian Journal of Primary Health, 21(1), 66-73.
  10. Bourke-Taylor H.M., Lalor, A., Farnworth, L., Pallant, J. (2014) Further validation of the Health Promoting Activities Scale with mothers of typically developing children. Australian Occupational Therapy Journal, 61(5), 308-315.
  11. Brown, T., Bourke-Taylor, H.M. (2014) Centennial Vision—Children and Youth Instrument Development and Testing Articles published in the American Journal of Occupational Therapy from 2009 to 2013: A content, methodology, and instrument design review American Journal of Occupational Therapy, 68(5), e154-216.
  12. Bourke-Taylor, H., Pallant, J., Law, M., & Howie, L. (2014). Relationship between sleep disruptions, health and care responsibilities among mothers of school-aged children with disabilities. Journal of Paediatrics and Child Health, 49(9), 775–782.
  13. Bourke-Taylor, H., Pallant, J., Law, M., (2014). Update on the Child’s Challenging Behaviour Scale following evaluation using rasch analysis. Child: Care, Health and Development, 40(2), 242-249.
  14. Bourke-Taylor, H., Pallant, J., (2013). The Assistance to Participate Scale to measure play and leisure support for children with developmental disability: Update following rasch analysis. Child: Care, Health and Development,39(4),544-551.
  15. Bourke-Taylor, H., Cotter, C., Stephan, R. (2013), Young children with cerebral palsy: families self reported equipment needs and out of pocket expenditure. Child: Care, Health and Development, 40(5), 654-662.
  16. Bourke-Taylor, H., Pallant, J., Law, M., & Howie, L. (2012). Predicting mental health among mothers of school-aged children with developmental disabilities: The relative contribution of child, maternal and environmental factors. Research in Developmental Disability, 33(6), 1732-1740.
  17. Bourke-Taylor. H.M., Law, M., Howie, L. Pallant, J.F. (2012) Development of the Health Promoting Activities Scale (HPAS) for measurement of mother’s participation in leisure. American Journal of Occupational Therapy, 66(1), e1-e10.
  18. Bourke-Taylor. H.M., Howie, L. Law, M., Pallant, J.F. (2012) Self reported mental health of mothers with a school aged child with a disability in Victoria: a mixed method study. Journal of Paediatrics and Child Health. 48(2), 153-159.
  19. Bourke-Taylor. H.M., Howie, L., Law, M., (2011) The preclusion of mothers of school aged children with disabilities from paid work and relationship to health related quality of life. Journal of Intellectual Disability Research, 55(5). 511-520.
  20. Bourke-Taylor, H. M., Howie, L., & Law, M. (2010). Impact of caring for a school aged child with a disability: Understanding mothers’ perspectives. Australian Occupational Therapy Journal, 57(2), 127-136.
  21. Bourke-Taylor, H. M., Law, M., Howie, L., & Pallant, J. F. (2010). Development of the Child’s Challenging Behaviour Scale (CCBS) for mothers of school aged children with disabilities. Child: Care, Health and Development, 36(4), 491-498.
  22. Rodger, S., Ashburner, J., Cartmill, L., Bourke-Taylor, H.M., (2010) Helping children with Autism Spectrum Disorders (ASD) and their families: Are we losing our occupation- centred focus? Australian Occupational Therapy Journal, 57(4), 276-280.
  23. Bourke-Taylor, H. M., Law, M., Howie, L., & Pallant, J. F. (2009). Development of the Assistance to Participate Scale (APS) for children’s play and leisure activities. Child: Care, Health and Development, 35(5), 738-745.
  24. Silverman, F., & Bourke-Taylor, H.M. (2009). Access to occupational therapy in schools: An international perspective. Journal of Occupational Therapy, Schools and Early Intervention, 2(4), 1-12.
  25. Bourke-Taylor, H. M., O’Shea, R, Gaebler-Spira, D (2007) Conductive Education: A functional skills program for children with cerebral palsy. Physical and Occupational Therapy in Pediatrics, 27(1) 45-62.
  26. Bourke-Taylor H.M. (2003) Melbourne Assessment of Unilateral Upper Limb Function: construct validity and correlation with the Pediatric Evaluation of Disability Inventory. Developmental Medicine and Child Neurology, 45:92-96.
  27. Fraser RK. Bourke HM, Broughton NS. Menelaus MB. (1995) Unilateral Dislocations of the Hip in Spina Bifida- a long term follow-up. Journal of Bone and Joint Surgery-British Volume, 77(4):615-9.